I have been meaning to write an update for everyone for a few weeks now. We have been adjusting to our new normal with of living with a feeding tube. Jacob got his feeding tube put in on Monday, October 1st. The surgery went well. We were in the hospital for the day. Thursday night […]
About Multiple Food Allergy Help
Author Archive | Multiple Food Allergy Help
“If you’re going THROUGH Hell, Keep Going!” ~ Winston Churchhill This week has been Hell. Monday Jacob finally had the further allergy testing that I requested a month ago. He showed allergies to 16 more foods that we tested. He basically has no safe meat/nut/ protein source, no safe grains left, and most common fruits […]
Jacob had another allergy test done today. This was the one I hoped to do after his August allergy test removed Broccoli, Coconut, Apple, Lemon, Potato, and Turkey from the rotation. After getting these results, I went home and made a list of everything left in his diet that had not been tested yet. I needed […]
Halloween is supposed to be a time of spooky costumes and yummy candy treats. For children with food allergies it also can be a time when they face exclusion and a real risk of having an allergic reaction. I really struggle with trying to celebrate Halloween. It’s harder than Valentine’s Day or even Easter! Admittedly, many […]
I know these changes will make our schools a better and safer environment for my children, as well as ALL the other current and future students who have food allergies! THAT is the real prize! That was the hope, the dream and the goal! Our work is not finished yet, but simply by speaking out- we have been able to influence others to improve the previous policies.
I just realized some of you may wonder what all the allergens we have to avoid are, so I thought I would give you the list. Caleb has asthma, and is allergic to: Peanuts Treenuts Dairy Cats Has tested out of: Beef Pork Canola Yeast Eggs Jacob is allergic to: Dairy Egg Peanut Treenuts Soy […]
Jacob has Eosinophilic Esophagitis aka: EoE; an inflammatory disease of the esophagus. Eosinophils are a type of white blood cell, that are not supposed to be found in the throat. If there are more than 15 in a biopsy sample a person is diagnosed with EoE. Jacob has had 4 such scopes done. His counts […]
School will be starting here in a little over two weeks. In preparation of that I met with Caleb’s first grade teacher this morning just to introduce ourselves and talk about his food allergies, and to get to know her. It is always a bit nerve-racking getting ready for school, getting all the paperwork updated […]
We all question what could be the cause of the increase in food allergies, and all the other autoimmune diseases, as I did in The Great Debate. In researching this topic I was lucky enough to get a phone conversation with Dr. Robert Lawrence, of John Hopkins University; who was gracious enough to lend me his thoughts on the subject.
I went to New York City for BlogHer12; an annual blogging conference for women. This year it was attended by some 5000 women bloggers! It’s not like it’s a homework assignment, but every one of us who went, has a blog, and feels compelled to share our opinion on the event. Prior to going, I read all […]