EoE Scope Update 8/2015

I took my son in this week to have an endoscopy to check the status of his EoE (Eosinophilic Esophagitis). We had not done a scope since January 2014! I don’t know why, well in truth I do. My marriage was crumbling, I got divorced, moved, began working, put on an annual conference, reformed my business,  my son had kidney issues which resulted in another major surgery- and now, I am finally coming up for air! I realize that this poor blog has been terribly neglected. I think my ADHD kicks in and I get overwhelmed when I look at all the posts that I want to re-write, or update, and then end up not tending to any of them. My blog has become the poor neglected first child, my “someday project”. Alas I digress.

The endoscopy scope results were not what I wanted to see. I had been assuming we would do the scope and everything would look fine, we have not really added many foods nor changed the diet much in the past year and half. Jacob has also been on the Budesonide slurry  for the past 3 years, which historically has been great for him, allowing us to add foods and prevent flare ups. I was quite discouraged when our GI doctor came in and told me there was visual evidence of an EoE flare up. The biopsy results came in today supporting this as well. So the million dollar question will be what is triggering this flare up? and how will we proceed with the care plan? Adding more medications? Removing foods? I am not sure.

My son is currently eating 29 foods, some with more regularity than others. Some seldom or very rarely (a few times a year, or a scant amount even!)  Regularly consuming:

  • Chocolate (Enjoy Life or Pascha)
  • Chicken
  • Turkey
  • Coconut
  • Rice
  • Potato
  • Sunflowerseed oil
  • Cucumber
  • Carrot
  • Banana
  • Lemon (ade)
  • Maple syrup

Sometimes (to rarely) consuming:

  • Broccoli
  • Peaches
  • Pears
  • Lettuce
  • Avocado
  • Kiwi
  • Mango
  • Pineapple
  • Celery
  • Sweet Red Pepper
  • Palm (shortening)
  • Cinnamon
  • Ginger
  • Sweet Potato
  • Cranberry
  • Tapioca (Starch)
  • Cabbage

So we will see what the game plan will be. We are scheduled to follow up with Boston Children’s Hospital next month. Hopefully we will be updating his allergy testing, and with luck perhaps we can try to add in some new foods, once we get a clean scope and the flare up under control.

 

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One Response to EoE Scope Update 8/2015

  1. Caroline August 28, 2015 at 5:56 am #

    Did I miss this post? Thank goodness your son has you as a mom. You work very hard to give your children a good life while you battle the roughest of stuff. Good work mom! I hope you find better news soon!

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