First off, I want to thank all of you for your prayers, support, and understanding about my lack of posts over the past 6+ months. As many of you know, Jacob was diagnosed last summer with bilateral Wilms tumors~ cancer. He underwent 6 months of chemotherapy and surgery. He had his last chemotherapy treatment in March. His follow-up MRI looked good; so the plan for now is to repeat scans- MRI or ultrasounds every 3 months to look and make sure there are no new tumors. If he remains free of disease for 2 years, then his scans will be less often -( every 6 months). We went to 3 different doctor appointments last week, Urology, Nephrology [Kidney]; and Jacob’s Pediatric Orthopedist. All are pleased with how he is doing, and want 6 month follow-up appointments.
Now that his body’s immune system is returning to its form of ‘normal’ I am dealing with new mystery rashes, new food allergy reactions, eczema, and EoE concerns. Jacob was diagnosed with Eosinophilic Esophagitis last October, after a positive GI scope; but because he was undergoing chemotherapy, we really have not really begun addressing it until now. Tomorrow morning both my boys are going into the hospital to have GI scopes done to check my older son for EoE; and to gauge what is going on with Jacob’s. I also have new allergist appointments set up in early May for both boys to get new testing done. I have no idea how our allergist will want to test: re-test confirmed allergens, new suspect foods, or doing a broader food/environmental panel. I have seen food reactions-rashes on Jacob from the following suspect foods: watermelon, avocado, corn, and safflower oil. I question if Caleb is having a potato allergy, for even though he will eat chips, he is reluctant to eat any baked or mashed potatoes, or french fries. This is what he did with beef, pork, and eggs, which when tested, we found out he was allergic to. So stay tuned folks! More updates to come in the very near future!