I have spent the past month in limbo, awaiting the call from the surgeon about what the plan will be to address and fix Jacob’s kidney issues. I finally got the call from the surgeon yesterday afternoon. After reviewing the recent MRI of Jacob’s kidneys, (for his recent oncology scan), and consulting with oncology, nephrology, and fellow urology doctors; the plan will revolve around preserving as much kidney as possible. This means we will NOT be removing the (crappy functioning) right kidney at this time. However we do need to address the poor drainage and alleviate the hydonephrosis as much as possible. In order to do this the surgeon will be preforming a trans -uretero-urostomy. This surgery will detach the right ureter from the bladder, pull it over and reattach it to the left ureter, in a “y” shape- and both kidneys would then drain into the bladder through the one left ureter.
His surgery is scheduled to happen in the next week 1/2. He will be in the hospital for 2-3 days. Our hope is to avoid any bladder trauma/stunning to avoid the post-surgical bladder failure we have seen as post-op complications with Jacob. This is where most of my anxiety revolves around. IF post surgery, his bladder does not resume function, We will need to consider either a catheter or intermittent catheterization again. The intermittent catheterization would be preferable as it would allow us to know when his bladder function returns; however the idea of having to cathe him myself again, 6-7 times a day, well- I still have PTSD from the last time we went through all this. But we do what we must and with any luck- we won’t have to even go there. Now the other question I had was what is the back-up- back-up plan if for some reason this surgery doesn’t work, failed, or we had further issues- the next step would likely be removing the right kidney.
Jacob is in no pain or indication of illness now, which makes having to go in and do this hard, but necessary.