Tag Archives | EoE

Managing the Recent #EoE Flare-up.

Managing food allergies and Eosinophilic food reactions gets tricky. My youngest son had been stable for the past two years. He was able to have many foods we lost when he needed to get his feeding tube placed. At that time, the only foods left were: sweet potato, pineapple, tapioca, chocolate, cranberries, and carrots. We […]

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AWESOME Allergy test results!

I took Jacob down to Boston Children’s Hospital to meet with the EGID Clinic team there. We saw our GI doctor and our Allergist, to follow up on Jacob’s EoE today. I started going to Boston because I was frustrated here since our doctors were not part of a team for managing his case which […]

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EoE Scope Update 8/2015

I took my son in this week to have an endoscopy to check the status of his EoE (Eosinophilic Esophagitis). We had not done a scope since January 2014! I don’t know why, well in truth I do. My marriage was crumbling, I got divorced, moved, began working, put on an annual conference, reformed my business,  my […]

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2013 Wrap-Up

December is a time for reflection for me. I LOVE Christmas, and the lights, music, gifting, snow, and magic! It also is the winding down of the year, a month that reminds me of what I have gotten done, or failed to get done! A time to review, and plan what needs to be done […]

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Loaded Chocolate Cereal Bars

My son has multiple food allergies, so finding safe treats has been hard, but with EoE foods can be added or taken away depending on noted reactions- as a result of resent food trials and scopes, we recently have been able to add rice back into his diet. This is huge, because it greatly expands […]

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Feeding Tube How-To-Guide

I have a friend who’s daughter is getting a feeding tube because her EoE is as severe as Jacob’s. I decided I would write up this post of tips and tricks we have been using to try to make the transition easier. When you get to the point of needing a feeding tube there is […]

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April 2013 Tests and Results

We have been busy with all kinds of doctor appointments these past few weeks! Jacob had his 1 year post chemotherapy oncology scans done. I was a wreck with Scanxiety prior to getting the test results. He had an ultrasound done on his kidneys and a chest CT which required anesthesia. I have seen enough kidney […]

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Examining Educational Options [part 1]

My son Jacob is 3 1/2. He will be turning 4 in early September. I have been having some anxiety since LAST August about the idea of him starting Pre-K. I have had “Research schools for Jacob” on my to-do list since then! My anxiety issues are compounded by his health concerns. Jacob is a […]

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Our “New Normal”

I have been meaning to write an update for everyone for a few weeks now.  We have been adjusting to our new normal with of living with a feeding tube. Jacob got his feeding tube put in on Monday, October 1st. The surgery went well. We were in the hospital for the day. Thursday night […]

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Always Darkest Before the Dawn

“If you’re going THROUGH Hell, Keep Going!” ~ Winston Churchhill This week has been Hell. Monday Jacob finally had the further allergy testing that I requested a month ago. He showed allergies to 16 more foods that we tested. He basically has no safe meat/nut/ protein source, no safe grains left, and most common fruits […]

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